Resources for parents

Finding the information and support you need when caring for a child with a severe disability or illness can be overwhelming. We're here to help. These resources can help you apply for benefits, navigate the healthcare system, get legal support, or secure a diagnosis.

A young mom cuddles her child while working from home

Legal & Advocacy

A national law and policy center focused on civil rights for people with disabilities, offering legal assistance and resources for parents.

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A national organization of attorneys committed to helping individuals with disabilities, their families, and the professionals who serve them.

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A platform that provides advocacy and support for families with children with special needs, offering resources and assistance in navigating various systems and services.

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Information about special education law and advocacy for children with disabilities, including articles, cases, and resources.

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Research & Connection

A national network of families of children with special health care needs that provides information, resources, and support.

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A global rare disease patient advocacy organization, providing resources, tools, and connections for patients and families.

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A library of resources for rare disease patients and their families.

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A comprehensive guidebook to help parents navigate the experiences and challenges of rare and serious medical conditions.

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A network that connects parents of children with disabilities or special health care needs with trained and experienced parent mentors for support and guidance.

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Support & Finances

A non-profit providing financial, emotional, and advocacy support to families caring for a child with a life-threatening illness in the New York tri-state area.

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A registered non-profit on a mission to ensure that every child with a rare and complex diagnosis reaches their full potential by providing families with financial support to obtain proper care.

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A Southern California non-profit providing monthly financial aid, subsidized housing, wellness services, and counseling to families of children battling life-threatening illnesses.

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Want Juno for your family?

Juno is only available through your employer or union. Send us a note and we'll reach out to your organization.

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